The thing I find hardest to deal with is having to constantly switch from one role to the other, for example when we wake in the morning we are husband and wife, then that changes when I have to get Keith out of bed, showered and dressed to greet the day I then become his carer. Keith also has to do the role switch thing when communicating his needs to me, as you could imagine we do at times have some rather colourful exchanges when we get our wires crossed.

Some days I can't help feeling quite resentful that MND has taken control of our lives and prevented me from doing the things I would normally be doing at this stage of my life. I would like to be spending more time with my daughter and pursuing hobbies that I for now have had to put on hold, but then the alternative is not preferable either. Often people will tell me how strong they think I am but as flattering as this is it is wrong because it is not a matter of being strong at all. All I am trying to do is to enable Keith and I to carry on our lives in a way that is as normal as possible. When it comes to strength, Keith is the one that provides that, when things get too tough and I feel like I am losing it he always manages to get me back on a even keel.

We like to look at life from the point of view of what we have, not what we don't have. What I mean by that is, we may not get to go out for dinner, or go to a movie or show or spend the day at the beach but on the other hand we do manage to enjoy lunch together everyday by our pool whilst other folks have to go to work.